Yesterday we received our follow up call from Summer's Neurosurgeon.
Good News:
There has been no change in her ventricle size for over a year now. The shunt is still 'out of place' and likely not working. She seems to be circulating the CSF on her own.
Not So Good News:
They saw a malformation on her scan that could cause problems at some point. It is called Arnold's Chiari Malformation, or CM. So basically, now that Summer has gotten to a point where we suspect she is circulating CSF, they have now discovered another 'risk' for hydrocephalus.
As upsetting as this is, in my Google Research, there is also a suggestion that many people do not experience any problems as a result.
That said, Summer will have another MRI in December at HSC (she gets to stay awake for this one!), and they will take a very close look at the CM and her spine.
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